However, someone must address the realities of the death of children in Canada. Firstly, only a small portion of dying children receive palliative care according to a national study that was done.
http://archpedi.ama-assn.org/cgi/content/full/161/6/597

Secondly, pediatric priority-setting (rationing) strategies developed to reduce wait times for pediatric surgeries are being developed and implemented in the province of Ontario (and perhaps others). No public input is requested and the strategies are covert. The implementation of these strategies bears no resemblance to the position statement described in terms of the planning and management of a dying child.

It was my family’s tragic experience to have our infant daughter die in such a manner. Her story was published (with gratitude) by the Journal of the Canadian Pediatric Society. http://www.pulsus.com/journals/pdf_frameset.jsp?jnlKy=5&atlKy=8088&isArt=t&jnlAdvert=Paeds&adverifHCTp=_NP&sTitle=The%20decision%20to%20accept%20disability:%20One%20family%27s%20perspective,%20Pulsus%20Group%20Inc&HCtype=Consumer

I hope that future position statements will tackle this difficult subject so that children with disabilities can receive humane and appropriate care.